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Issue #152, Winter 2007 |
When Supportive Housing Isn'tThe rationale behind supportive housing for people with mental disabilities is that pairing individualized services with permanent housing will help them live more independently. But one San Francisco advocate sees more neglect than support.By Martha Bridegam
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Its a scene reminiscent of a madhouse in
another century: a tenant suffering pain from untreated physical illness,
malnourished, mentally frozen by anxiety, sits in a room heaped with third-hand possessions and garbage.
A property manager stands in the doorway, grimacing at the smell, demanding
a cleanup, and threatening penalties. The tenant feels like a prisoner.
The manager acts like a warden. This scene plays out regularly in supportive-housing
projects for recently homeless people in present-day San Francisco.
The tenants are not prisoners, but instead are threatened with eviction,
which almost guarantees a return to homelessness. They are not physically threatened,
but instead suffer from neglect, which managers often attribute to the
tenants failure to use available services. Supportive housing for homeless people is meant
to prevent just these kinds of crises. Properly run supportive housing
provides individualized services to help disabled people live independently.
Possible services include case management, medical and psychiatric care,
housekeeping, home health assistance, medication and appointment reminders,
addiction treatment, meal programs, and life coaching. The idea is to
stabilize tenants, both for their own sake and to save public dollars by avoiding the more
expensive institutions such as jails, hospitals, and homeless shelters. Many supportive-housing programs I know well dont
make these services accessible enough to people with serious mental
disabilities. In the 15-odd years Ive been an advocate for very
poor people in San Francisco, I have been through several eviction-threat scenes with clients, and have
heard of many, many more from colleagues and clients, and clients
friends and neighbors. It seems accepted as normal that some mentally
disabled supportive-housing tenants are neglected and allowed to fail. I have handled some of my clients case management
and home care myself to prevent their eviction because their assigned
case managers didnt. I have cleaned and decluttered
rooms, negotiated with property managers, advocated with public and nonprofit service providers, coaxed tenants
to accept state-paid home-care workers, made reminder calls before medical
appointments, and more. This tells me that supportive services do help.
It also tells me supportive housing typically fails any tenant needing
careful follow-up. Most supportive-housing programs in San Francisco
provide services primarily by employing case managers to connect tenants
with outside nonprofit and government service providers, though sometimes
there is a visiting nurse or other medical professional on site. Medical
staff, when available, can be godsends, and case managers are often
good-hearted. However, case managers face frequent crisesfights,
suicide threats, health inspectors, cops, paramedics, and coroners.
And theres always paperwork. They have very little time to engage
with each tenant. Disconnects result. Instead of having a therapist
visit a depressed tenant, a case manager gives the tenant a phone number
for a mental-health office that the tenant might never call. A case
manager arranges for a home-care worker to clean a tenants room, without realizing the
tenant feels too ashamed of her untidiness and is too fearful of management
spying to let the worker inside. Such failures are easily blamed on
the severity of the tenants disability or the tenants exercise of the
right to refuse services. Its easy to say that the tenant rejected
the home-care worker, rather than that the counselor failed to persuade
her to open the door. Supportive staff sometimes can be culpably indifferent.
Volunteer social worker Judi Iranyi works with a bipolar, speed-addicted
client who for years has been homeless and in declining health. The
client was evicted from a supportive-housing building after missing a rent payment because
an unexpected deduction from her disability check left her short of
funds. The buildings case manager never asked why the rent was
unpaid. When Iranyi questioned the case manager later, the response
was, Well, Im here. She didnt come. That is,
the bipolar addict bore the burden of approaching the case manager,
whose duty was merely to sit behind a desk. San Francisco programs are no worse than most others
around the country; in fact, some are likely better. Ive spoken
with advocates for the homeless and mentally ill around the country
who find my stories match their experiences, and some national studies suggest the problems I
describe are widespread. Any nationwide figure is imperfect, but the
supportive-housing industrys cheerful claims about retention ratespercentages
of tenants who staysuggest too many are leaving. In a recent newsletter
published by the federal Interagency Council on Homelessness, director
Phil Mangano commented that, Permanent supportive housing works
for vulnerable and disabled populations
. Today communities across
the country are targeting this technology to those experiencing chronic
homelessness and achieving 80 to 85 percent retention rates on average.
The unanswered question is, why do 15 to 20 percent leave? A 2006 federal study commissioned by the Department
of Housing and Urban Development (HUD) found that during 2004 a quarter
of tenants nationwide left permanent supportive housing after less than
two years of residency. Proof that San Francisco doesnt have the
worst record, the same study found low retention rates in Philadelphia,
where 385 of 943 tenants, more than 40 percent, in supposedly permanent
supportive housing left during the 3 1/2-year study period. Two-fifths of those
who left were asked to leave for violating program rules or for being
incapable of maintaining themselves in the permanent supportive
housing environment, which, in my experience, simply means a tenant needs more help than
a program wants to provide. San Franciscos Care Not Cash, which places
indigent single adults in supportive housing, has received harsh criticism
from tenant advocates who believe too many people housed through the
program leave or are evicted. Care Not Cash ostensibly provides housing and supportive services to
people with or without disabilities, but advocates complain that the
programs managers neglect tenants with disabilities and then threaten
to evict them when disability-related lease violations arise. In a November 2006 San Francisco Chronicle
op-ed, Iranyi called for an audit of Care Not Cashs evictions
and coerced departures. Although Mayor Gavin Newsom claimed in his 2006
State of the City address that 95 percent of the 2,222 people in the
program remain housed, Iranyi wrote that her own and others
anecdotal experience made her extremely concerned about the number
of residents who are forced to move out of managed properties through
evictions, threats of eviction, or failure to maintain residency for
reasons directly or indirectly related to the residents disability/history. Local advocates have criticized the practices of
the John Stewart Company, a large private property manager, and the
Tenderloin Housing Clinic, a nonprofit with roots in tenant activism,
although several advocates recognize that Tenderloin Housing has become more sensitive to tenants
with disabilities in recent years. Deputy director Debbie Raucher says
that Tenderloin Housing has established an eviction-prevention protocol
that now calls for holding meetings, issuing warnings, and offering
a last-chance opportunity in the form of a housing retention contract
before it begins eviction. John Stewart Company president and CEO Jack
Gardner rejected claims that evictions were excessive in the 10 buildings
his company manages for the city of San Francisco. The average building,
he says, experiences only 2.6 evictions per year80 percent
of which are for nonpayment of rent and the balance for behavioral issues.
Nevertheless, he acknowledges that mismatches do exist between tenants
needs and a buildings available services. He says this happens
because managers accept tenants who are a bad fit because of the shortage
of supportive housing and the urgency of getting people indoors. Some San Francisco programs have been successful
at keeping seriously disabled tenants housed. The city-operated Direct
Access to Housing (DAH)which houses nearly 900 tenants, all frequent users of city
medical or mental-health servicesdoes so by providing one case
manager for every 15 to 20 tenants. It also provides exceptional access
to medical and psychiatric staff. Marc Trotz, DAHs manager, says
eviction is rare, generally related to health and safety concerns, and
pursued only after pretty extraordinary attempts have been
made to rectify problems. There is no national standard to define supportive
housing. It can take the form of small buildings with onsite services
or scattered-site housing with visiting service providers, but the more
commonplace type is the big box, a large residential hotel
or apartment building that houses 50 to 100 tenants and has on-site
services. Almost all of San Franciscos programs are big boxes. Much of the funding for the nations supportive-housing
programs comes from federal McKinney-Vento grants, frequently serving
people the federal government calls chronically homeless:
those who are mentally disabled or suffer from addiction. A 2001 paper
by the Technical Assistance Collaborative suggested that the McKinney-Vento
criteria favor big boxes to the detriment of disabled tenants: To
a certain extent, the complexities of aggregating sufficient capital,
operating, and supportive-services resources, and the efficiencies that
can be achieved with larger site-based models, have driven the most
common models of supportive housing for homeless people. However, these high-density approaches are not
favored by most housing advocates for people with significant disabilities. Paul Boden, executive director of the Western Regional
Advocacy Project (a coalition of homelessness organizations), says neglect
of serious mental disability is more common than not in
a big box. Managers often fill buildings with people who share similar
disabilities and assume tenants all have the same needs. Such segregation
is still legally defensible, even though the 1999 Supreme Court decision
in Olmstead v. L.C. held that people should not have to live
in segregated places in order to receive treatment. In this environment,
it becomes particularly easy to skimp on service spending and to neglect
individual needs. If one tenant needs more help than others, the response
is not What else does X need? but Does X belong here? The big-box environment also encourages creamingchoosing
people who are the easiest to help. Michael Allen, a Washington, D.C.-based
civil-rights lawyer formerly with the Bazelon Center for Mental Health
Law, says HUD has encouraged creaming by demanding measurable results in
federal homelessness programs, such as tallies of successful graduates
who move on to conventional housing. He says property managers pick
tenants who are easiest to serve and [have] the best attitude
and label people with mental disabilities or tendencies to assert their
rights as troublemakers. Jennifer Mathis, deputy legal director at Bazelon,
says many supportive- housing programs impose such rigid behavioral rules on tenants that
you basically cant have a mental illness to stay there. Boden says some programs foster inherent
creaming by understaffing and under-funding the support portion of the
program. Managers dont have adequate resources to serve
the most disabled, so they reject or evict them. He equates this breakdown in care to a system where the nurse
goes out to the emergency room and sees whos got the least amount
of injury and brings them in because theres no doctors. Does that
make the nurse an asshole? I no longer agree that it does. I used to
think it did. DAHs Trotz sees a growing second wave
of supportive-housing thinking that recognizes the need to not
kick people out on their conditions. He says within the last year
we had many difficult conversations with our [service] provider community to say lets raise the bar.
But, he believes that, while management may agree, change requires educating
down to property managers and support staff. If trickle-down enlightenment fails to reform the
big box model, the scattered-site model presents a hopeful alternative.
Unlike the big-box practice of segregating tenants according to disability,
scattered-site programs rent apartments for their clients in private
buildings and provide on-site services as needed. One of the most acclaimed
scattered-site programs is New York Citys Pathways to Housing.
Run by Dr. Sam Tsemberis, Pathways houses survivors of long-term street
homelessness. Tenants receive visits from an expert interdisciplinary Assertive Community
Treatment team of medical, psychiatric, and social-work professionals. Some scattered-site programs, such as JOIN in Portland,
Ore., use non-credentialed peer counselors. JOINs executive director,
Marc Jolin, says his organization doesnt provide professional
counseling, but rather offers friendship and support. When
problems come up that jeopardize tenants housing, says Jolin,
we get to the problems before the landlords figure them out.
If a tenant does have to leave a particular rental, JOIN helps with
the move and stays in touch at the next placementan advantage
over big-box programs that cut off services when a tenant leaves. Tsemberis calls for supportive housing that adopts a radically consumer-driven approach that places tenants in charge of their own treatment and services: Instead of providing care that has been tailored for a building, he advocates designing treatment and services that address the needs of the individual. Say How can I help you? and mean it, he advises. As trust builds, he says, it becomes OK, for example, to ask someone not to pace at night if it bothers neighbors. Tsemberis and civil-rights lawyer Michael Allen
argue for separating housing from mental-health and addiction treatment.
Tsemberis says when people are placed in situations where housing and
treatment are dependent on one another, they have a tendency to revert to behaviors such as
hoarding, withdrawal, and drug abuse. They begin a cycle that can eventually
get them evicted, and that only adds to their suffering. Bazelons Jennifer Mathis says, The
supportive scattered-site model seems to be the most successful model,
and its the least expensive. Tsemberis estimates that housing
and services under Pathways to Housing costs $20,000 to $22,000 per
person per year, compared with $28,000 to $35,000 for a New York City
shelter cot with services, or costs of $40,000 and up for a supportive
housing residential hotel room with services. For all its strengths, scattered-site housing for
the mentally disabled may not be the perfect approach either. JOINs
Jolin says, You can bureaucratize anything, dehumanize anything.
The real need is for mentally disabled poor people to receive services based on what they need, not where they
live. Copyright 2007 Martha Bridegam is an attorney and journalist who has represented tenants of supportive housing properties in San Francisco. Resources HUDs Predicting Staying in or Leaving Permanent Supportive Housing That Serves Homeless People with Serious Mental Illness. March 2006. www.nhi.org/go/hudhomeless How many homeless stay housed is a better measure than how many housed, by Judi Iranyi. San Francisco Chronicle op-ed, November 16, 2006. Technical Assistance Collaboratives Olmstead and Supportive Housing: A Vision for the Future. www.nhi.org/go/CHCSPaper Corporation for Supportive Housing www.nhi.org/go/csh |
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